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Epatient Experts

Having spent the past week participating in a workshop for FDA patient representatives which included sessions on safety analysis and pharmacokinetics, giving a presentation on ways that e-patients can...

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Great Expectations

Happy New Year! Nourished by time, quiet, and a flurry of emails on the new listserv for the Society for Participatory Medicine, the December holiday break allowed me to be thoughtful about everything...

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The 5 Myths of Patient Engagement with HIT

The remarks below are a distillation of my presentation at the April 14, 2011 Patients as Partners in Care: Engaging Patients through Health IT event at the National Press Club hosted by RTI...

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Precision Medicine Must Be Participatory Medicine

I am honored today to be involved in two healthcare initiatives that are at the same time foundational and cutting edge. As a patient, particularly one active in the digital space, there is no greater...

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